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UID:20251006T114449EDT-7725kheOnp@132.216.98.100
DTSTAMP:20251006T154449Z
DESCRIPTION:\n\nBringing together neuroscience researchers\, trainees\, pat
 ients and caregivers to highlight brain health research in an accessible f
 ormat.\n\nHealthy Brains\, Healthy Lives (HBHL)'s Trainee Committee is ple
 ased to present Bridging Gaps: Patient-Oriented Neuroscience Research Symp
 osium 2025. This Symposium is the HBHL EDI Trainee Committee's flagship ev
 ent\, designed to centre the voices and experiences of people living with 
 neurological disorders.\n\nThe Symposium will feature a keynote\, a poster
  session and a panel discussion\, all surrounding the themes of health car
 e\, rare diseases of the nervous system and patient partnerships.\n\nAtten
 dees will include trainees\, patients\, caregivers\, McGill faculty and re
 presentatives from partner organizations such as CHILD-Bright\, Regroupeme
 nt québécois des maladies orphelines (RQMO) and the Société québécoise de 
 la schizophrénie.\n\nThis event aims to foster patient-researcher partners
 hips by making science more accessible to people with lived experience\, a
 nd to increase awareness and inclusivity for rare diseases of the nervous 
 system.\n\nREGISTER NOW!\n\n\n	\n	Agenda\n\n	\n		\n			\n				Time\n				Session\n			\n		\n		\n			\n				11:
 00-11:05 a.m. \n				\n					Opening remarks\n\n					Speaker: Alan Evans\, Scientific Dire
 ctor of Healthy Brains\, Healthy Lives\n				\n			\n			\n				11:05 a.m.-12:00 p.m.\n				\n					Key
 note: The value of patient partnerships in translational research on devel
 opmental disorders\n\n					Speaker: Tatiana Ogourtsova\, »ÆƬÀóÖ¦ÊÓƵ\n				\n			
 \n			\n				12:00-1:00 p.m.\n				Lunch\n			\n			\n				1:00-2:00 p.m.\n				Poster presentations (15 p
 osters on brain health-related topics)\n			\n			\n				2:00-2:15 p.m.\n				Intermission\n
 			\n			\n				2:15-3:15 p.m.\n				\n					Panel: Navigating the health care system with rare d
 iseases of the nervous system\n\n					Panellists:\n\n					\n						Julie Coulombe\, Société
  québécoise de la schizophrénie \n						Maria Masnata\, Neuromuscular Disease Ne
 twork for Canada\n						Abbe Lai\, »ÆƬÀóÖ¦ÊÓƵ\n						Dr. Jason Karamchandani\, 
 The Neuro (Montreal Neurological Institute-Hospital)\n					\n\n					Moderators:\n\n					
 \n						Dr. Roberta La Piana\, The Neuro\n						Sonia Lussier\, Unité \n					\n				\n			\n			\n				3:15-3
 :30 p.m. \n				\n					Flash Talk \n\n					Speaker: Linda Lafontaine\, Canadian ambassado
 r for the Spastic Paraplegia Foundation\n				\n			\n			\n				3:30-3:45 p.m. \n				Awards cer
 emony and closing remarks \n			\n		\n	\n\n	Speakers\n\n	Tatiana Ogourtsova\, Keyno
 te speaker\n\n	Tatiana Ogourtsova is an occupational therapist and an Assis
 tant Professor at the School of Physical and Occupational Therapy\, Facult
 y of Medicine and Health Sciences at McGill. Her expertise spans the areas
  of childhood disability\, pediatric neurorehabiltiation\, the use of nove
 l approaches\, including technology-driven solutions\, telehealth and coac
 hing. Her work focuses on family-centred care\, mental health\, knowledge 
 mobilization\, development and implementation of evidenced-based clinical 
 practices and use of patient-oriented research. She leads the RESI-ALLIANT
  KID laboratory with an interdisciplinary team of experts\, clinicians\, p
 arents and youth partners. \n\n	Julie Coulombe\, Panellist\n\n	A peer family
  caregiver for the Société québécoise de la schizophrénie et des psychoses
  apparentées since 2020\, Julie has experiential knowledge as a caregiver 
 and companion for many families\, allowing her to experience the health ca
 re system network in the greater Montreal area\, in child psychiatric and 
 psychiatric hospitals. She collaborates as a citizen researcher with the C
 haire interdisciplinaire sur la santé et les services sociaux pour les pop
 ulations rurales (Interdisciplinary Chair on Health and Social Services fo
 r Rural Populations) at the Université du Québec à Rimouski (UQAR) and was
  awarded a grant from the Fonds de recherche du Québec's ENGAGE Program in
  2021. She is involved in various areas and projects related to peer famil
 y support\, and her field experience gives her a strong understanding of t
 he context surrounding issues in the field of health and social services. 
 She is a graduate of the Université de Montréal's undergraduate microprogr
 am in mental health and has been working for the National Bank of Canada f
 or 20 years.\n\n	Sonia Lussier\, Moderator\n\n	\n\n	A communications professi
 onal\, Sonia Lussier has led numerous projects in the fields of health and
  environment\, notably with cancer patients. As a patient partner\, Ms. Lu
 ssier works with Dr. Tracie Barnett as a co-director of the patient partne
 r unit at McGill for the Unité de soutien au système de santé apprenant (S
 SA) Québec. She has also served as a patient partner mentor with health st
 udents for the Bureau du Patient Partenaire (BPP) at Université de Montréa
 l\, and is involved in other patient partner development projects in Great
 er Montreal area. Sonia is also a professional musician and conducts choir
 s in the Montérégie region. \n\n	 \n\n	 \n\n
DTSTART:20251122T160000Z
DTEND:20251122T210000Z
LOCATION:MUHC-GLEN\, CA\, QC\, Montreal\, H4A 3J1\, 1001\, Decarie Boulevar
 d
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
URL:/hbhl/channels/event/bridging-gaps-patient-oriente
 d-neuroscience-research-symposium-368139
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